Data is the lifeblood of our digital society, but how our personal information is stored and shared is an understandably contentious issue. ‘ Tools for Life: Data Sharing and Public Health ’, a 20-month public engagement project which concluded in March 2021 and was headed by Information School Lecturer Dr Jonathan Foster, looked into the issues surrounding this idea in the context of patient data, with consideration of this issue being particularly important against the backdrop of the current NHS opt-out system for consent. Dr Jonathan Foster Alongside Dr Foster, the project involved fellow Information School Lecturer and expert in Health Informatics Dr Laura Sbaffi, and Professor Suzanne Mason, a clinician academic and Professor of Emergency Medicine based at the University’s School of Health and Related Research (ScHARR). With Jonathan’s expertise being in Information Management, the project had a broad knowledge base from both the health and the data side of the equation. The...
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